Below you will find an excerpted text version of the reviews #25-49 completed for the COPAR research.


Network Analysis Form (SNAF)

Who is using this tool and for what purposes?

The SNAF was developed at the University of Oregon to identify people in the social network of a focus person, the frequency of contact, types of activities and length of time known. It's used to help persons build on their existing social ne

Remarks, if any:

This tool was provided without specific comment and reviewed by the project staff.

In general, has this tool served it's purpose?

Not reported.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

It has been used only with persons with are developmentally disabled. The directions suggest ways for using anchors or persons who can help someone in the interview situation. This methodology is provided to facilitate using the interview with persons who are severely disabled or have difficulties with communication.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

It's an in-person interview with the consumers and (if needed or requested) anchors. Categories of persons in the social network include family, co-workers/schoolmates/co-residents, people paid to provide help or service, friends, neighbors/others, and additional network members.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

The tool is a 3 page, 24 question interview which takes 20-40 minutes to complete. Directions and a script are provided to users.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Not known.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Not known.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency listed below.

Is the tool copyrighted?

Contact the person and agency listed below.

Contact:

Specialized Training Program

Address:

135 College of Education, University of Oregon

City, State, Zip:

Eugene, Oregon 97403

Phone Number:

503-686-5311

 


Aging Families of Children with Mental Retardation: The Impact of Lifelong Caregiving

Who is using this tool and for what purposes?

This tool was developed by the Heller School at Brandeis University to study parents of people with mental retardation who have been caregivers for a number of years.

Remarks, if any:

This tool was provided without specific comment and reviewed by the project staff. While it has been used with families of persons with mental retardation, there is a section on social networks that could be adapted for use with consumers.

In general, has this tool served it's purpose?

Not reported.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

It has been used with aging families of children with mental retardation.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

It's an in-person interview with the family member. The section on social supports (p. 45-48) includes questions on identified members of a circle of support, e.g. how many years have you known?, who do you talk to about when you're upset?, how satisfied are you with the amount of support that is provided by your personal network?

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

It is applied in a research context by trained interviewers.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Contact the person and agency listed below.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Contact the person and agency listed below.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency listed below.

Is the tool copyrighted?

Contact the person and agency listed below.

Contact:

Brandeis University, Heller School

Address:

City, State, Zip:

Phone Number:

617- 736-3300

 


Personal Integration Inventory

Who is using this tool and for what purposes?

This tool was developed by the Center on Human Policy at Syracuse University to look at someone's life and to record the extent of integration into the community.

Remarks, if any:

This tool was provided without specific comment and reviewed by the project staff.

In general, has this tool served it's purpose?

Not known.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

The tool was developed for use by someone who knows the focus person, the person with a disability. Since it's a direct observation instrument, the communication skills of the respondent are not as critical.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

It would require direct observation and interview of significant others, service providers, etc.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

The tool is completed by persons who know the consumer well. It does not appear to take special training and would take about 45 minutes to 1 hour to complete.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

While not know, it is unlikely that the tool has been standardized or that there are interpretive guidelines?

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Not known; for more information contact the person and agency listed below.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Not known; for more information contact the person and agency listed below.

Is the tool copyrighted?

Not known; for more information contact the person and agency listed below.

Contact:

RTCCH/Center on Human Policy, Syracuse University

Address:

200 Huntington Hall

City, State, Zip:

Syracuse, New York 13244-2340

Phone Number:

315-443-3851

 


Certification Project

Who is using this tool and for what purposes?

This project was initiated by the Department of Mental Health/Division of Mental Retardation and Developmental Disabilities to develop a method for certifying and eventually evaluating Medicaid waiver services (at this time, residential services only) in the state of Missouri.

Remarks, if any:

This tool was provided some comment and the reviewed by the project staff. A follow-up phone call was made to provide some additional detail.

In general, has this tool served it's purpose?

The project has recently completed 4 pilots of the process using technical assistance teams to look at services using the set of principles outlined. For example, Section 1 on Inclusion contains: an Outcome - Individuals are valued members of the community; and Sub-Outcomes - Individuals are accepted as people of unique value, e.g., Individual move about the community in typical vehicles, skils which are trained are critical to the acceptance of the individual by the community.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

The tool was developed for use by a team of persons who provide technical assistance to service providers. It It requires interview and observation of persons with disabilities, although no adaptations for persons with limited communication skills have been developed to date.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

It requires direct observation and interview of significant others, service providers, etc. although interview formats have not been developed to date.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

The process is completed by a team and would appear to take several days, e.g., observations, interviews, record reviews, report writing.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Not to date and unlikely since it's a technical assistance process rather than an evaluation.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Not to date.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Not to date.

Is the tool copyrighted?

Yes it's copyrighted; yes it can be used.

Contact:

Department of Mental Health/DMRDD

Address:

1706 E. Elm, P.O. Box 687

City, State, Zip:

Jefferson City, Missouri 65102

Phone Number:

314-751-8215

 


Family Assistance Program-Parent Survey II

Who is using this tool and for what purposes?

Used by the state of Illinois Department of Mental Health and Developmental Disabilities to determine satisfaction with the family assistance program as well as the impact of caregiving.

Remarks, if any:

This tool was provided without specific comment and reviewed by the project staff. The focus of this tool is the family of a person with a disability.

In general, has this tool served it's purpose?

It was not reported by the respondent.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

It is applied to families of persons with disabilities exclusively.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

The survey is mailed and a $15.00 stipend is offered to those who return it. There are sections on family description, impact of person with a disability, typical community activities, and support needs.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

It would appear to take a high level of reading proficiency to complete. The cover letter states that it takes about 45 minutes to finish filling it out.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Contact the person and agency listed below.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Contact the person and agency listed below.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency listed below.

Is the tool copyrighted?

Contact the person and agency listed below.

Contact:

Illinois Department of Mental Health and Developmental Disabilities

Address:

401 William Stratton Building

City, State, Zip:

Springfield, Illinois 62765

Phone Number:

217-782-7179

 


The Home-Based Support Services Program Evaluation Questionnaire

Who is using this tool and for what purposes?

Used by the state of Illinois Department of Mental Health and Developmental Disabilities to determine satisfaction with the home-base support program as well as the impact of caregiving.

Remarks, if any:

This tool was provided without specific comment and reviewed by the project staff. The focus of this tool is the family of a person with a disability.

In general, has this tool served it's purpose?

t was not reported by the respondent.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

It is applied to families of persons with disabilities exclusively.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

The survey is mailed to support service recipients. There are sections on service use, support needs, service satisfaction, impact of caregiving on family, behavior of family member with a disability, family health, community participation, a

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

It would appear to take a high level of reading proficiency to complete. The cover letter states that it takes about 1 hour to finish filling it out.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Contact the person and agency listed below.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Contact the person and agency listed below.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency listed below.

Is the tool copyrighted?

Contact the person and agency listed below.

Contact:

Illinois Department of Mental Health and Developmental Disabilities

Address:

401 William Stratton Building

City, State, Zip:

Springfield, Illinois 62765

Phone Number:

217-782-7179

 


Quality of Life Survey

Who is using this tool and for what purposes?

The tool was developed by the Montana Developmental Disabilities Planning and Advisory Council and is used by casemanagers who are evaluating residential and vocational services.

Remarks, if any:

This tool was provided without specific comment and reviewed by the project staff. A phone call was made to the person cited in this review for some additional information.

In general, has this tool served it's purpose?

They are happy with the results, but there have been problems in timely completion of the review and report writing.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Applied only to living arrangements and vocational programs for persons with developmental disabilities.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

Completed by on-site visit and interview of staff and consumers of the service. Sections of the consumer interview include: home (e.g., Do you think your house is clean?); work (e.g., Do you like doing your job?); daily assistance with living skills; community integration and independence; interpersonal relationships; rights and choices in life; and, general concerns.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

Use of the tool is mandated for case managers and optional for regional councils which are made up of parents and consumers. About 50% of the councils are participating in the evaluation process.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

While there are no interpretive guidelines and the tool has not been standardized, results are collated at the State Council. Trends in the data indicate needs for additional recreation opportunities, transportation services and advocacy training.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

It has been discussed, but not a high priority at this time.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency listed below.

Is the tool copyrighted?

It is not copyrighted and may be used if the source is acknowledged.

Contact:

Developmental Disabilities Planning & Advisory Council

Address:

P.O. Box 526

City, State, Zip:

Helena, Montana 59624

Phone Number:

406-444-1334

 


Quality Assurance Standards

Who is using this tool and for what purposes?

This tool is being field-tested by the state of Tennessee Department of Mental Health and Mental Retardation as a way of evaluating services for persons with developmental disabilities.

Remarks, if any:

This tool was provided without specific comment and reviewed by the project staff. A phone call was made to the person cited in this review for some additional information. While it is a quality assurance tool, some of the indicators (e.g., choice) might be of use in the development of a tool.

In general, has this tool served it's purpose?

The field-test has been satisfactory to date and results of have led to refinement of the tool.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

The tool was developed for use by a team of persons who provide technical assistance to service providers. It It requires interview and observation of persons with disabilities, although no adaptations for persons with limited communication skills have been developed to date.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

The survey is s combination of site visit, interview, observation, and record review at program with staff, consumers, family members and other interested persons.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

In-person takes a team of persons 2-5 days to complete the site visit and report writing is an additional activity. At present, team members are staff from the DMH/MR. They have considered adding peers, parents and consumers in the future.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

There are no plans to standardize the tool or develop interpretive guidelines?

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

There are no plans to complete such studies now or in the future.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency listed below.

Is the tool copyrighted?

Contact the person and agency listed below.

Contact:

Department of Mental Health and Mental Retardation

Address:

Doctors' Building, 706 Church Street

City, State, Zip:

Nashville, Tennessee 37243-0675

Phone Number:

615-741-4230

 


Community Based Employment Quality Assurance Standards

Who is using this tool and for what purposes?

District contract managers in the state of Florida use this tool to monitor supported employment service providers.

Remarks, if any:

In general, has this tool served it's purpose?

It has increase awareness of intended outcomes of supported employment.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

This tool applies to persons with developmental disabilities in competitive employment situations.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

In-person interviews with the person with a disability, family, service provider, service organization and the employer.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

It takes one full day to be completed by the district manager and requires no specific training.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Answers are analyzed individually, then scores between people in the same program are averaged to look at improvement across time.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

No.

Is the tool copyrighted?

Tool is not copyrighted and may be used if the source is acknowledged.

Contact:

HRC/PDDSC

Address:

Bldg. 5, Room 210, 1317 Winewood Blvd.

City, State, Zip:

Tallahassee, Florida 32399

Phone Number:

904-488-3673

 


Centers of Excellence

Who is using this tool and for what purposes?

This tool is used by Developmental Services Institutions (DSI) staff in the state of Florida for self-survey and headquarters staff to survey institutions.

Remarks, if any:

While this is an institutional review, there are sections on participation, choice and consumer satisfaction which contain direct interview questions for persons with disabilities.

In general, has this tool served it's purpose?

Two DSI's have been designated as centers of excellence. There have been physical plant changes and a philosophical shift among staff.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Tool applies only to persons with developmental disabilities in institutions. There are no suggestions for interviewing or observing persons who have communication limitations.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

Observation, interview, and limited record review.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

Selected headquarters and DSI staff receive 1-2 days training in orientation and practical application. These DSI staff then orient their staff.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Survey teams must reach consensus on each item. Interpretive guidelines and scoring procedures are included in the tool.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Yes. Requests can be made directly to DIS supervisors (list is attached).

Is the tool copyrighted?

Tool is not copyrighted and may be used if the source is acknowledged.

Contact:

HRC/PDDSC

Address:

Bldg. 5, Room 205, 1317 Winewood Blvd.

City, State, Zip:

Tallahassee, Florida 32399

Phone Number:

904-488-1552

 


Independent Professional Review

Who is using this tool and for what purposes?

This is a quality-of-life review of individuals (not services or programs) receiving services that are contracted out by the Massachusetts Department of Mental Retardation. Each year, a specific group of people receiving services are selected for study.

Remarks, if any:

In general, has this tool served it's purpose?

Helped us focus on quality of life of individuals; what they want and how we can support them.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Surveyors do a lot of observation and interviewing of people closest to the individual to try and get an accurate picture. The review focuses primarily on adults with mental retardation and some children. There are no suggestions for interviewing or observing persons who have communication limitations.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

Consumer interview via site visit, family, provider staff, support staff and advocates.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

Human service degrees or experience, specific training including PASS, normalization, interviewing and observation skills.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

There are no ratings and trends are picked up from individual reports?

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

A statewide report is available.

Is the tool copyrighted?

Tool is not copyrighted and may be used if the source is acknowledged.

Contact:

Department of Mental Retardation

Address:

160 N. Washington Street

City, State, Zip:

Boston, Massachusetts 02766

Phone Number:

617-727-6508

 


Family/Citizen Monitoring Process

Who is using this tool and for what purposes?

This is a volunteer monitoring process which looks at the quality of life of individuals using residential services in the state of Massachusetts.

Remarks, if any:

This tool was provided without specific comment and reviewed by the project staff. It contains a consumer interview that has a number of questions for consideration in the development or refinement of a quality-of-life interview.

In general, has this tool served it's purpose?

Not provided with the tool.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

The primary focus is on persons with developmental disabilities who use residential services. There are no suggestions for interviewing or observing persons who have communication limitations.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

Volunteers observe and interview people who are living in a given residence during a site visit. In addition, they are provided with written background information before the visit (e.g., persons who live there, description of the neighborhood, individual goals).

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

The tool is used by consumers, families of persons with disabilities and interested community members.. Team members are provide with an orientation which includes information about confidentiality, site visits, regulations, report writing, etc.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

There are no ratings and reports are written for follow-up by regional monitoring committees.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency below.

Is the tool copyrighted?

Tool is not copyrighted and may be used if the source is acknowledged.

Contact:

Department of Mental Retardation

Address:

160 N. Washington Street

City, State, Zip:

Boston, Massachusetts 02766

Phone Number:

617-727-6508

 


Utah Division of Services for People with Disabilities (DSPD) Quality Assurance Outcomes Survey

Who is using this tool and for what purposes?

Utah Division of Services for People with Disabilities' quality assurance teams use the tool to monitor residential and day training programs in the state.

Remarks, if any:

This survey is primary focused on looking at residential and day services, in addition, there is an appended consumer satisfaction survey.

In general, has this tool served it's purpose?

We are just finishing the first year of use. We feel that our purposes for the tool are being met and having a positive impact on service providers in movement towards an outcome-oriented service system.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. It works well for residential and day training programs and a broad range of disabilities. We have worked primarily with adult services.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

It is an observation process when consists of viewing persons in programs during program time. Questions are asked when observation doesn't provide needed information. A final review (if needed) would be looking at the written records. It involves an observation, ask individual, ask others, review records method of obtaining information for each standard or indicator, e.g., The individual participates in planning in the residential and/or day training environment.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

Our quality assurance team which is composed of persons who are knowledgeable about people with developmental disabilities. Instructions are explicit, but may require some background.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

The toll has not been standardized. Raters completed an informal validity check in Colorado on eight programs through comparison of ratings. We have worked on interrater reliability to reach 75% concurrence on scores/items.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Interrater reliability only.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Results and data should be available.

Is the tool copyrighted?

No. Contact the person or agency below regarding use of items in Colorado.

Contact:

Division of Services for People with Disabilities

Address:

120 N 200 W

City, State, Zip:

Salt Lake City, Utah 84103

Phone Number:

801-538-4200

 


Job Satisfaction Scale

Who is using this tool and for what purposes?

This tool was developed by the Department of Rehabilitation Psychology at the Illinois Institute of Technology to look at job satisfaction of persons in both supported and sheltered employment.

Remarks, if any:

This tool was provided without specific comment and reviewed by the project staff. It contains a consumer interview (and adapted Likert scale) that has a number of questions for consideration in the development or refinement of a quality-of-l

In general, has this tool served it's purpose?

It served it's purpose in regards the research conducted. Findings indicated high leveles of job satisfaction in both supported and sheltered employment.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Used solely with persons who are are developmentally disabled. While it appears to be used with persons who have communication skills, there is a unique aspect which would assist persons who cannot read and cannot respond with words (see belo

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

The information is provided through an interview with the consumer. It's unique aspect is a set of faces that persons can point to in response to a question, e.g. a down-turned smile that corresponds with happy, not happy.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

The tool could be applied by a program representative, family member or volunteer and appears to require no special training. It looks like it would take no more than about 20 minutes to complete.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Answers are rated from 1 (very dissatisfied) to 5 (very satisfied) depending on the pointed response to each of 12 questions. Ratings are then total for both an intrinsic and extrinsic satisfaction score.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Yes. In an attached article titled Comparison of Sheltered and Supported Work Programs: A Pilot Study in Rehabilitation Counseling Bulletin, December, 1986, 66-82.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency below.

Is the tool copyrighted?

While the scale was developed as an adaptation of two other scales, you would need to contact the person and agency below.

Contact:

Department of Rehabilitation Psychology, Illinois Institute of Technology

Address:

10 West 35th Street

City, State, Zip:

Chicago, Illinois 60616

Phone Number:

312-567-3000

 


Quality of Life Indicators

Who is using this tool and for what purposes?

The state of South Carolina (Department of Mental Retardation) is considering the use of this tool in the development of their evaluation system for Home and Community-Based Waiver.

Remarks, if any:

This tool was provided without specific comment and reviewed by the project staff.

In general, has this tool served it's purpose?

Not known as yet

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Will be applied solely to persons in living or working environments funded by the HCB Waiver. There are no suggestions for interviewing or observing persons who have communication limitations.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

In-person interview with the person with a disability. Basic interview areas include: community living (e.g., Did you pick the place you live?); Community Employment ( Did you choose your job?); Leisure Hours (e.g., Do you decide how to spend your money?); In Your Home (e.g., Do you plan the menus?); and, In Day Program (e.g., Are you satisfied with the activities?).

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

It would not appear to require specific training other than in interviewing techniques. It would appear to take about 20 minutes to complete.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Not at this time.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

There do not any plans at this time.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Not at this time.

Is the tool copyrighted?

Contact the person and agency listed below.

Contact:

South Carolina Department of Mental Retardation

Address:

P.O. Box 4706

City, State, Zip:

Columbia, South Carolina 29240

Phone Number:

803-763-6533

 


A Guide to Service Quality Review

Who is using this tool and for what purposes?

Used by volunteers in the state of Connecticut (through the Department of Mental Retardation) to review services provided to people with developmental disabilities from a quality enhancement perspective.

Remarks, if any:

This tool was provided with referral to three documents which include an overview, the review process and a sample report.

In general, has this tool served it's purpose?

Accomplishments listed in the overview include examples of how people have become more involved in decision-making, additional community activities, information exchanges between service providers, etc.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. The survey respondent states that there are no limitations in use based on communication, however, the process guide is not provided.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

An on-site visit which includes observation, interviews with consumers, family members, friends, advocates and service providers. Sections include: presence and participation; good relationships; choice; respect and dignity; competence;

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

The tool is applied by a team of volunteers including consumers, family members, friends, advocates and service providers who are provided with training on the process, interview and observation techniques and report writing. The process takes two days to complete. The first day is the review of the service site. The second day includes a conciliation meeting and a feedback session with the service provider.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Issues are analyzed service by service. There are no interpretive guidelines and it has not been standardized.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Permission may be obtained from several service providers who have completed the process by calling one of the persons listed below.

Is the tool copyrighted?

No it is not copyrighted. Yes, it can be used with permission.

Contact:

Department of Mental Retardation Central Office

Address:

90 Pitkin Street

City, State, Zip:

East Hartford, Connecticut 06108

Phone Number:

203-725-3813

 


Focus Group Questionnaire

Who is using this tool and for what purposes?

Used by the Georgia Department of Human Resources to evaluate mental health, mental retardation and substance abuse programs.

Remarks, if any:

This tool was provided without specific comment and reviewed by the project staff.

In general, has this tool served it's purpose?

Not known.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. It would appear to be limited to persons with very good communication skills. For example, one of the questions is How do you know when good services are being provided?

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

The tool is applied in person in a focus group approach. There are scripts for consumers, families and service providers.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

Staff from the Division of Human Resources. It would take considerable facilitation skills and about 90 minutes to complete.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Appear to be interpreted per service. This approach would not lend itself to standardization.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Not known, but very unlikely. Contact the person and agency below.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency below.

Is the tool copyrighted?

Contact the person and agency below.

Contact:

Quality Improvement Office, Georgia Department of Human Resources

Address:

878 Peachtree Street, Suite 324

City, State, Zip:

Atlanta, Georgia 30309

Phone Number:

404-894-6552

 


Community Presence and Participation in Supported Employment

Who is using this tool and for what purposes?

Used by supported employment contractors in Georgia (Department of Human Resources) to report on degree of community participation and presence.

Remarks, if any:

This tool was provided without specific comment and reviewed by the project staff.

In general, has this tool served it's purpose?

Not known. However, it is based on a mapping system first developed by John O'Brien and Charles Galloway and known to be quite useful.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. Since it's a direct observation instrument, the communication skills of the respondent are not as critical.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

Observation of consumers across the employment situations supported by a particular agency. It consists of a matrix with community presence and participation axes. Service providers plot their services based on examples of presence and participation. The lower left hand corner represents a segregated service while the upper right hand corner represents integration.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

This particular version is focuses on supported employment service providers.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

There are not interpretive guidelines and the tool has not been standardized.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency below.

Is the tool copyrighted?

Contact the person and agency below.

Contact:

Georgia Department of Human Resources

Address:

878 Peachtree Street, Suite 310

City, State, Zip:

Atlanta, Georgia 30309

Phone Number:

404-894-6552

 


Case Manager Questionnaire

Who is using this tool and for what purposes?

Used by the New York Office of Mental Retardation and Developmental Disabilities (Planning Bureau) for evaluation of supported housing services.

Remarks, if any:

While this tool focuses on service satisfaction and support needs as perceived by the case manager, there are several questions for consideration in the development or refinement of a quality-of-life interview.

In general, has this tool served it's purpose?

Yes.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Completed by the case manager/coordinator/advocate.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

Mailed to the case manager.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

According to the respondent, it requires a college education.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

No standardization or guidelines. Some scales have been developed.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No, however, many items are from the Center or Community Change Through Housing and Support in Vermont. The implication is that these items have been studies in regards validity and reliability.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Yes. A copy of preliminary findings is available.

Is the tool copyrighted?

Not copyrighted, use is possible by contacting the person and agency below.

Contact:

Office of Mental Retardation and Developmental Disabilities Planning Bureau

Address:

44 Holland Ave.

City, State, Zip:

Albany, New York 12229

Phone Number:

518-474-4904

 


Consumer Interview

Who is using this tool and for what purposes?

Used by the New York Office of Mental Retardation and Developmental Disabilities (Planning Bureau) for evaluation of supported housing services.

Remarks, if any:

In general, has this tool served it's purpose?

Yes. Used to indicate experiences and situation at 3-6 months after moving into an apartment or home.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. Limitations would include persons who are verbal and have mild mental retardation. Sample question in General Psychological Well-Being: Do you make up your own mind?

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

In-person interview of person with disability.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

According to the respondent, it requires a graduate degree or above with clinical experience and experience with persons who are developmentally disabled.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

No standardization or guidelines. Scales have been developed.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

See attached findings which include factor analysis.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Yes. A copy of preliminary findings is available.

Is the tool copyrighted?

Not copyrighted, use is possible by contacting the person and agency below.

Contact:

Office of Mental Retardation and Developmental Disabilities Planning Bureau

Address:

44 Holland Ave.

City, State, Zip:

Albany, New York 12229

Phone Number:

518-474-4904

 


California Quality Assurance Standards for Clinical Outcomes

Who is using this tool and for what purposes?

The California Department of Developmental Services uses this tool to evaluate and ensure the quality of services provided by developmental centers.

Remarks, if any:

In general, has this tool served it's purpose?

This tool is currently being used as a baseline, results are not available as yet.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Specifically designed for persons with all levels of disability.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

In-person interview and observation with consumers, family members and direct and management staff.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

The tool is applied by trained personnel of developmental centers who are assisted by a representative of the accreditation council (formerly ACDD). The time of the evaluation varies in accordance with the size of the sample of clients.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Not at present.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Not at present.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Not at present.

Is the tool copyrighted?

No, the tool is not copyrighted and we would welcome the idea of additional testing of our standards by your organization.

Contact:

Q.A. Branch, Department of Developmental Services

Address:

1600 9th Street

City, State, Zip:

Sacramento, CA 95814

Phone Number:

916-654-2241

 


Placement Evaluations

Who is using this tool and for what purposes?

The tool is used by staff of the Division of Mental Health and Developmental Disabilities in Alaska to determine if consumers and families are getting the services that they they determined they want.

Remarks, if any:

In general, has this tool served it's purpose?

Too soon to tell.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. Limitation do not appear to be present perhaps because the use and format is flexible and can change as we continue to develop and use it.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

In-person interview with all of the above.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

It takes about 15 minutes to complete by a Regional Program Specialist from the Division of Mental Health and Developmental Disabilities.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Reviewed by supervisor.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

A follow-up survey was conducted by Ellen Ganley of Northern Community Resources to see if consumer satisfaction matched the placement evaluation.

Is the tool copyrighted?

No it is not copyrighted; contact the person and agency below.

Contact:

Division of Mental Health and Developmental Disabilities

Address:

P.O. Box 110620

City, State, Zip:

Juneau, Alaska 99811-0620

Phone Number:

907-465-3370

 


Developmental Disabilities Program Standards

Who is using this tool and for what purposes?

The tool was developed by primary and secondary consumers, providers and advocates to reflect a value-based attempt to measure service delivery. The Alaska Division of Mental Health and Developmental Disabilities contracts with Northern Community Resources.

Remarks, if any:

In general, has this tool served it's purpose?

Too soon to tell.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

The tool was developed solely for use in services provided to people with developmental disabilities. Process guidelines were not provided.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

In-person interview with all of the above by a team of consumers, providers and advocates. Standards are divided into agency/organization, human resource/development, environment, habilitation, and valued outcomes.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

A training outline is available from the person and agency listed below.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

The evaluation team provides a debriefing with the agency and a report to the Division of Mental Health and Developmental Disabilities outlining strengths and recommendations and strategies for areas of improvement.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Yes, contact the agency listed below.`

Is the tool copyrighted?

No it is not copyrighted; contact the person and agency below.

Contact:

Northern Community Resources

Address:

4454 Chena Hot Springs Road

City, State, Zip:

Fairbanks, Alaska 99712

Phone Number:

907-488-2370

 


Survey of Community Integrated Living Arrangements -

Version D

 

Who is using this tool and for what purposes?

This tool was adapted with permission from the State of Colorado COPAR instrument by the Illinois Department of Mental Health and Developmental Disabilities to measure outcomes for persons receiving community integrated living services.

Remarks, if any:

This tool was provided without specific comment and reviewed by the project staff. Phone contact was made to provide additional information. Also attached are a long and an abbreviated version for people with mental illness.

In general, has this tool served it's purpose?

For the purposes of the project (evaluating community living services) it has worked well.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. It would appear to be limited to persons with very good communication skills. There are several prompts/rephrasing that would help facilitate the interview.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

In-person interview which includes a section on satisfaction (e.g., Do you like the people who work where you live?), and decision-making (e.g., Who picked your job or work?).

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

Not known. It takes 15-20 minutes to complete.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Contact the person and agency listed below.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Will be comparing validity and reliability with similar questions used on the COPAR.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the agency listed below. Reports are available from the Illinois Department of Mental Health and Developmental Disabilities with written permission.

Is the tool copyrighted?

Since it was adapted from the COPAR, it shouldn't be a problem.

Contact:

The Institute for Public Affairs, Sangamon State University

Address:

City, State, Zip:

62794-9243

Phone Number:

217-786-6591

 


National Consumer Survey Instrument

Who is using this tool and for what purposes?

Developed by Developmental Disabilities Center at Temple University for State Councils on Developmental Disabilities, the purpose of this tool is to gather data about people with developmental disabilities, e.g., types of services received, satisfaction with services, self-esteem, etc. on a national level.

Remarks, if any:

This survey has been used nationally by the National Association of Developmental Disabilities Councils. This respondent provides a perspective from a state (Ohio) level. Respondent is an Ruth Kirkland, Early Child Specialist with the Ohio Department of Mental Retardation and Developmental Disabilities.

In general, has this tool served it's purpose?

Yes, it has served its purpose. It has been the first of a three step process to collect data, develop a state report and a 3-year plan for the Ohio Developmental Disabilities Council.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

The tool is applied solely to persons with developmental disabilities. If the person is under 16 years of age, a surrogate is consulted for answers. It would appear to be limited to persons with good communication skills.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

The survey is conducted via personal interview or telephone with either the consumer or a surrogate.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

It requires no specific degree and takes from 1-3 hours to complete.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

The results were analyzed individually and compiled into a state report. There is a surveyor's guide, but no interpretive guidelines?

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Yes, contact the person and agency listed below.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Yes. State and national report are available.

Is the tool copyrighted?

Contact the person and agency listed below.

Contact:

Developmental Disabilities Center, Temple University

Address:

9th Floor Ritter Annex

City, State, Zip:

Philadelphia, Pennsylvania 19122

Phone Number:

 


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