and the Lives of People
with Developmental Disabilities
and their Families
In response to several visitors, we're devoting as much space as possible to information about managed care and the impact on people with developmental disabilities and their families. We will present as much of a balance as we can in the articles and links that we find regarding this topic. If you have comments or questions, please send them them to us and we will try to post them as quickly as possible.
(Note on 7/31/97: This has been a difficult topic for us to keep current on. As you will see, most things here are over a year old. Hopefully, it's still useful information, but for a more current site specific to this topic, please travel to The National Clearinghouse on Managed Care and Long-Term Services and
Supports for Adults with Developmental Disabilities and Their Families. )
Here is how The Accreditation Council recently described the term managed care in a brief article.
Update on Quality
Volume12, Number 3
Complete article here
Here's an interesting quote we found in that same article:
The Center on Human Policy at Syracuse University has developed A Position Paper on Managed Care and Long-Term Supports in Developmental Disabilities.
This reminded us of an analogy that Larry Naeve (CITY Community Services) once shared with us:
The National Association of State Directors of Developmental Disabilities Services, Inc. has just completed a new publication titled Managed Care and People with Developmental Disabilities: A Guidebook.
Also, the Arc has a good overview article titled Managed Care and Long-term Services for
People with Mental Retardation in the Question and Answer section of their home page and you can get right to it from here.
Here's another great resource. You can subscribe to a list server that HSRI (Human Services Research Institute, Boston) set up to exchange information about managed care and people with disabilities. If you want to get on the list, you need to send an e-mail message to:
containing only the words:
subscribe MCAREDIS firstname lastname
[[[[e.g., subscribe MCAREDIS John
After you send the message, you will get a confirming message back. After
that, all messages will come into you via e-mail. This is how the mailing list is described by HSRI:
Here's an important visitor request for information.
A brief glossary of managed care concepts (of which we are searching for an author.
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