Below you will find an excerpted text version of the reviews #50-72 completed for the COPAR research.

 

Life Span Case Management

Who is using this tool and for what purposes?

This tool is being developed by Martin Luther Homes ( an agency serving people with developmental disabilities in several states) to assist casemanagers in determining an individual's chosen lifestyle and subsequent goals and objectives which help the individual move towaards that desired future.

Remarks, if any:

This tool was provided without specific comment and reviewed by the project staff.

In general, has this tool served it's purpose?

Not known.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Focused on persons with developmental disabilities receiving services from the Martin Luther Home. Since it is answered by an observer, communication skill level is not a factor.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

It appears that although it's a person-centered plan, it is developed without directly interviewing the consumer. There are sections on community presence and participation, respect and choice which call for information about current decisions made by the consumer, identification of a circle of support, etc.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

Applied by case managers. It would appear to take 45-60 minutes to complete.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

There are methods of determining average ratings for each section.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Contact the person and agency listed below.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency listed below.

Is the tool copyrighted?

Contact the person and agency listed below.

Contact:

Martin Luther Home

Address:

2480 West 26th Avenue

City, State, Zip:

Denver, CO 80211

Phone Number:

303-455-8006

 


The Effects of the FRS Program on Families of Persons with Developmental Disabilities

Who is using this tool and for what purposes?

This tool (originally designed by Shirley Zimmerman at the University of Minnesota), is being implemented by the Ohio Department of Mental Retardation and Developmental Disabilities (ODMR/DD) through the local boards of MR/DD to sample satisfa

Remarks, if any:

In general, has this tool served it's purpose?

At the present time, the data is still being collected.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

The tool is applied to the primary caregiver of a person with developmental disabilities who resides with his/her family.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

A telephone interviewer solicits the information from the primary caregiver.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

The survey is being conducted by local boards of MR/DD FRS personnel. Training is provided and it does not require a degree.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Questions will be analyzed individually to identify different components. The revised tool has not bee standardized, and there are no guidelines?

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Reports will be available at a later date; please contact the person and agency listed below.

Is the tool copyrighted?

No. Contact the person and agency listed below.

Contact:

Ohio Department of Mental Retardation and Developmental Disabilities

Address:

30 East Broad Street, Suite #1275

City, State, Zip:

Columbus, Ohio 43215

Phone Number:

614-466-7203

 


Residential Evaluation Tool

Who is using this tool and for what purposes?

Contracted evaluators use this to evaluate and certify community residential settings in the state of Washington.

Remarks, if any:

Although standards are focused primarily on residential service administration (e.g., finances, physical requirements) there is a section on Instruction and Support that includes standards on integration, personal power and choice, relationship, etc.

In general, has this tool served it's purpose?

It is a new instrument and has been in place for about 60 days. So far, it's proving to be very useful.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. It was developed to be used by evaluators who have experience and training working with individuals who have communication deficits.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

The evaluators visit residential sites and randomly call family members. Information is provided by all who are responsible for providing residential services.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

By contracted evaluators who meet qualifications of training and experience as outlined in their contract.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

The results are compiled and used to determine certification status for the residential service.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

No reports have been developed to date.

Is the tool copyrighted?

The tool is not copyrighted, however, if items are used - acknowledgement would be appreciated.

Contact:

Division of Developmental Disabilities

Address:

P.O. Box 45310

City, State, Zip:

Olympia, Washington 98504-5310

Phone Number:

206-586-6180

 


Quality Assurance for People Moving

Who is using this tool and for what purposes?

Volunteers, with the assistance of a Quality Assurance Manager, use this for every individual who moves from an institution to a community residential setting in the state of Washington.

Remarks, if any:

 

In general, has this tool served it's purpose?

Yes. We have been able to identify strengths and needs of residential and vocational providers as well as specific challenges/opportunities in various parts of our state. The tool has also been of value in evaluating satisfaction.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. Limitations have been minimal and the training provide to the volunteers has enabled them to overcome obstacles we had anticipated.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

All of the above. The tool consists of standards in the areas of health and safety, personal power and choice, personal value and positive recognition by self and others, physical and social integration, friendships and competence in daily self-management.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

Volunteers use the tool. There is specific training they are required to attend. The actual interview takes about one hour.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

The team of volunteers with the assistance of the Q.A. Manager, collate all of the information gathered and produce a written report with recommendations and/or a plan of action.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Yes. Quarterly reports are compiled by the Quality Assurance Managers throughout the state and the Quality Management Program Manager compiles a state-wide report.

Is the tool copyrighted?

The tool is not copyrighted, however, if items are used - acknowledgement would be appreciated.

Contact:

Division of Developmental Disabilities

Address:

P.O. Box 45310

City, State, Zip:

Olympia, Washington 98504-5310

Phone Number:

206-586-6180

 


Lifestyle Satisfaction Scale (LSS)

Who is using this tool and for what purposes?

The tool was developed by the University of Illinois to measure satisfaction with residential services.

Remarks, if any:

This tool was provided through the literature review and summarized by the project staff.

In general, has this tool served it's purpose?

It's a scaled down version of the Residential Satisfaction Scale which had been previously tested by Novak and associates in 1980. According to the authors of the tool, in 1985 it was the only reliable instrument available to measure happiness and quality of life variables from the perspective of people with developmental disabilities.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. The language of the survey would limit its use to persons who can communicate well (e.g. How do you like your home where you live?).

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

In-person interview with consumer.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

For the purposes of the research, the interview was conducted by the highly trained authors and several graduate students. It would appear to take about 10-15 minutes to complete.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Scoring formulas and subscales have been developed and are outlined in the article titled The lifestyle Satisfaction Scale (LSS): Assessing Individuals' Satisfaction with Residence, Community Setting, and Associated Services by Heal and Chadsey-Rusch in Applied Research in Mental Retardation, V.6, 475-490 (1985).

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Yes. See above.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency listed below.

Is the tool copyrighted?

Contact the person and agency listed below.

Contact:

Department of Special Education

Address:

University of Illinois/ Champaign-Urbana

City, State, Zip:

Champaign, Illinois 61820

Phone Number:

217-333-2325

 


Quality of Life Survey

Who is using this tool and for what purposes?

This tool was adapted by Colorado State University from work by Schalock and others to look at differences between persons receiving sheltered and supported employment.

Remarks, if any:

This tool was provided through the literature review and summarized by the project staff.

In general, has this tool served it's purpose?

In the context of research, the tool served the purpose of providing comparisons of perceived quality-of-life between two groups of people with disabilities.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. The language of the survey would limit its use to persons who can communicate well (e.g. Have you noticed any changes in [your] living skills?). In one situation where the individual could not communicate, a mother was used as a surrogate respondent.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

In-person interview with the consumer. There are 18 questions in the areas of environmental control, community involvement and perception of personal change.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

For the purposes of the research, it was conducted by highly trained researchers. It takes about 30 minutes to complete.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Answers are combined to develop scales of environmental control, community involvement and perception of personal change.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Yes. Available in an article by Sinnott-Oswald, Gliner and Spencer titled Supported and Sheltered Employment: Quality of Life Issue Among Workers with Disabilities, Education and Training in Mental Retardation, December, 1991, 388-397.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency listed below.

Is the tool copyrighted?

Contact the person and agency listed below.

Contact:

Department of Occupational Therapy, Colorado State University

Address:

City, State, Zip:

Fort Collins, Colorado 80523

Phone Number:

303-491-1101

 


Proposed Outcome Based Performance Measures

Who is using this tool and for what purposes?

Developed by the Accreditation Council on Services to People with Developmental Disabilities (Maryland) to look at outcomes of support and service for people with disabilities. These measures can be used to form the base of an agency's quality enhancement program.

Remarks, if any:

This tool was provided without specific comment and reviewed by the project staff.

In general, has this tool served it's purpose?

Not known as yet. It is currently being field-tested in the state of Illinois as a way to develop outcome measures for the Community Integrated Living Arrangements program. In addition, there will be 10 other field-tests throughout the country.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. The language of the survey would appear to limit its use to persons who can communicate well (e.g. What kinds of things do you do outside your home and work?). However, they are using the strategy ask the person, ask persons who know the person best and review records. This allows for a variety of ways to accumulate information with persons who have difficulty with communication.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

In-person interview with all of the above. Areas of measure include: social inclusion; relationships; rights; individual control; satisfaction; privacy; environment; health; security and economic well-being; and, growth and development.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

Assume it would take several days with a highly-trained team.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Still being field-tested, contact the person and agency listed below.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Still being field-tested, contact the person and agency listed below.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Still being field-tested, contact the person and agency listed below.

Is the tool copyrighted?

Contact the person and agency listed below.

Contact:

The Accreditation Council

Address:

8100 Professional Place, Suite 204

City, State, Zip:

Landover, Maryland 20785-2225

Phone Number:

301-459-3191

 


This is Your Life!

Who is using this tool and for what purposes?

This was developed as a guide to person-centered planning for use by case managers and the persons and families they support. It was adapted by Allen, Shea & Associates (Napa, California) from work by Beth Mounts. The purpose is to provide an opportunity for case managers to listen to what people with disabilities and their families consider to be their own quality-of-life indicators.

Remarks, if any:

This tool was adapted by one of the project reviewers.

In general, has this tool served it's purpose?

Yes. It has allowed people with disabilities, families and case managers opportunities to talk about issues, concerns, hopes and dreams and to move away from the purchase-of-service relationship.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. There are limitations to the interview, however, case managers are encouraged to rephrase questions and to use surrogates (e.g., family members, friends, advocates) when needed.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

In-person with everyone who is in the focus person's circle of support. There are questions which cover strengths, support needs, hopes, dreams, fears and friendship.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

It does not take special training other than a knowledge of group facilitation. It takes 1-2 hours to complete the planning activity.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

It is what it is, an individualized plan which focuses on personal quality-of-life measures. There are no interpretive guidelines?

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Several samples are in the attached guide. Additional reports can be provided from the person listed below.

Is the tool copyrighted?

Not copyrighted; items can be used with acknowledgement of source.

Contact:

Allen, Shea & Associates

Address:

1780 Third Street

City, State, Zip:

Napa, CA 94559

Phone Number:

707-258-1326

 


The ICD Survey of Disabled Americans

Who is using this tool and for what purposes?

The tool was developed for the International Center for the Disabled (New York) in order to interview 1,000 Americans with disabilities for the Lou Harris Poll.

Remarks, if any:

This tool was provided without specific comment and reviewed by the project staff. While it focuses in detail on accommodation, there are questions on community participation and satisfaction that might be considered in the development or refinement of a quality-of-life interview.

In general, has this tool served it's purpose?

Yes. A multi-variable study of how different disabilities have affected people's lives.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

The language of the survey would limit its use to persons who can communicate well . Only 3% (30) of the 1,000 persons interviewed described their disability as mental retardation.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

Telephone interview.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

Public opinion researchers.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Yes. In the attached report The ICD Survey of Disabled Americans: Brining Disabled Americans into the Mainstream.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Yes. In the attached report The ICD Survey of Disabled Americans: Brining Disabled Americans into the Mainstream.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Yes. In the attached report The ICD Survey of Disabled Americans: Brining Disabled Americans into the Mainstream.

Is the tool copyrighted?

Contact the person and agency listed below.

Contact:

ICD-International Center for the Disabled

Address:

340 East 24th Street

City, State, Zip:

New York, New York 10010

Phone Number:

212-679-0100

 


Comprehensive Functional Assessment

Who is using this tool and for what purposes?

Full Life Focus Program Coordinators at the Resource Exchange (a not-for-profit agency serving people with developmental disabilities in Colorado Springs, Colorado) use this tool to develop personal futures plan.

Remarks, if any:

In general, has this tool served it's purpose?

Yes. Results are that everyone focuses on capabilities, who makes choices in someone's life, preferences, support networks, levels of human interaction, etc.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. No limitation at all, most flexible tool we've ever used.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

Generally, in-person, but will take information any way necessary. All of the above are interviewed if involved in someone's life. Areas include community living, self-management, health and physical development, social skills and interactions and affirmation of rights and responsibilities. Each area includes a narrative on strengths, opportunities/access, needs, and vulnerabilities.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

a coordinated effort with a little training in the process. The time varies from person to person.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Group interpretation - no scale.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Yes; contact the person and agency listed below.`

Is the tool copyrighted?

No; contact the person and agency listed below.

Contact:

Full Life Focus/The Resource Exchange

Address:

2375 N. Academy Blvd.

City, State, Zip:

Colorado Springs, Colorado 80909

Phone Number:

719-380-1100

 


Quality of Life Map

Who is using this tool and for what purposes?

This was adapted by Allen, Shea & Associates (Napa, California) from the work of John O'Brien and Charles Galloway on mapping vocation services. It was developed to be used by a circle of support as a visual way of looking at where someone has been and where they're going regarding personalized quality-of-life.

Remarks, if any:

This tool was adapted by one of the project reviewers.

In general, has this tool served it's purpose?

It's still being field-tested.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. The limitations would only be in situations where there are people who don't know the focus person well and he or she cannot communicate well.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

The circle of support assists the focus person on describing what is now and what will be in the areas of social/recreation, transportation, work, home and other. The group defines a number of statements from what is now happening to ideal situations in each area.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

It does not take special training other than a knowledge of group facilitation. It takes about 30 minutes to complete the planning activity.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

No.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

A samples is included.

Is the tool copyrighted?

Not copyrighted; items can be used with acknowledgement of source.

Contact:

Allen, Shea & Associates

Address:

1780 Third Street

City, State, Zip:

Napa, CA 94559

Phone Number:

707-258-1326

 


Behavior Development Survey

Who is using this tool and for what purposes?

Developed by Feinstein & Conroy and used as an evaluation of residential services. In addition, this tool provides the basis for both the Independent Assessment of new Hamsphire's Home and Community-Based Waiver Services for People with Developmental Disabilities, Illinois Individual Evaluation Survey and the CARC v. Thorne Longitudinal Study (all three of which were provided to the project staff for review).

Remarks, if any:

This tool was provided without specific comment and reviewed by the project staff. While it focuses on behavior and service planning, there are questions on community participation and a consumer satisfaction interview that should be considered in the development or refinement of a quality-of-life interview.

In general, has this tool served it's purpose?

Not known.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. The language of the consumer interview is very accessible (e.g. Do you like living here?), but there are no strategies for persons with communication difficulties. Notable for this project are the abbreviated Harris Scale of Integrated Activities (p. 13) and the Consumer Interview (p. 15).

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

In-person with all of the above.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

It appears to take some training and several hours to complete.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Contact the person and agency listed below.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Contact the person and agency listed below.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency listed below.

Is the tool copyrighted?

Yes; contact the person and agency listed below.

Contact:

Institute on Disabilities/UAP, Temple University

Address:

426 Ritter Annex

City, State, Zip:

Philadelphia, Pennsylvania 19122

Phone Number:

215-787-6561

 


Inventory for Client and Agency Planning

Who is using this tool and for what purposes?

Developed by Bruininks and others for DLM Teaching Resource, it's designed for use as an individual assessment useful for service planning and evaluation.

Remarks, if any:

This tool was provided without specific comment and reviewed by the project staff. While it focuses on behavior and service planning, there are questions on community participation and a strengths list that could be considered in the development or refinement of a quality-of-life interview.

In general, has this tool served it's purpose?

Not known.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. Since it is answered by an observer, communication skill level is not a factor.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

Observation of consumer in the following areas: functional limitations; adaptive behaviors, problem behavior, services and recommendations. The Personal and Community Living Skills assessments (p. 6 & 7) might be of sue as well as the Social and Leisure Activities checklist (p. 11).

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

A trained observer and about two hours.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Yes. Provided in the attached Technical Summary of the Inventory for Client and Agency Planning.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Yes. Provided in the attached Technical Summary of the Inventory for Client and Agency Planning.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency listed below.

Is the tool copyrighted?

Yes; contact the person and agency listed below.

Contact:

DLM Teaching Resources

Address:

One DLM Park

City, State, Zip:

Allen, Texas 75002

Phone Number:

 


Classroom Implementation Site Checklist

Who is using this tool and for what purposes?

It's used by the State of Colorado Department of Education to facilitate a collaborative approach to change in the lives of students with disabilities. In a phone interview, the respondent listed below states that it's used to for a baseline evaluation of a classroom.

Remarks, if any:

While this tool focuses on best practice in a special education setting , there are standards on interactions with peers and community as well as a charting progress in that area that could be considered in the development or refinement of a quality-of-life interview.

In general, has this tool served it's purpose?

Yes. It raises issues of full inclusion.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. Appears to be based primarily on observation, so that communication limitations would not be a concern.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

In-person through observation of students and school site, interview of the teacher and others.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

It would appear to take a complete day and would require a background in special education.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Results are graphed as baseline, mid and end of the year.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

The respondent listed below states that the tool is valid, but not particularly reliable because it does not reflect changes from year to year.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency listed below.

Is the tool copyrighted?

Contact the person and agency listed below.

Contact:

Special Education Services Unit, Colorado Department of Education

Address:

201 East Colfax, Room 300

City, State, Zip:

Denver, Colorado 80203

Phone Number:

303-866-6694

 


IEP Evaluation - Colorado

Who is using this tool and for what purposes?

Adapted from work by Pam Hunt (SFSU, 1986), this tool is used by the State of Colorado Department of Education to audit IEP goals and objectives.

Remarks, if any:

While this tool focuses on evaluating IEP objectives, the method of totaling scores for indicators could be considered in the development or refinement of a quality-of-life interview.

In general, has this tool served it's purpose?

Yes. It raises issues of full inclusion, age-appropriateness, use of natural settings, etc.?/P>

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. It's based on a record audit, so communication limitations would not be a concern.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

Audit of Individual Education Plans.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

It would require a background in special education.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Results are totaled and a percentage score is developed.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency listed below.

Is the tool copyrighted?

Contact the person and agency listed below.

Contact:

Special Education Services Unit, Colorado Department of Education

Address:

201 East Colfax, Room 300

City, State, Zip:

Denver, Colorado 80203

Phone Number:

303-866-6694

 


Non-Verbal Self-Esteem Scale for Children

Who is using this tool and for what purposes?

Developed at the University of Colorado at Denver to assess self-esteem in children with limited verbal skills.

Remarks, if any:

This tool was provided with limited comment and reviewed by the project staff.

In general, has this tool served it's purpose?

Yes. Preliminary field-tests indicate good potential for the use of the instrument.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. Since it's a picture format, it can be used with children with limited communication skills.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

In-person interview with the child; also contains an accompanying observer scale for use by parents.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

Could be used by teachers with limited training and takes 5 minutes with an individual and 15-20 minutes with a small group. There is also a videotaped training guide.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

A global self-esteem score is calculated by awarding two points for choosing a positive picture, one point for choosing both positive and negative and zero points for choosing the negative picture.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Yes. Attached in Self-Esteem in Children: A Review of Pictorial Self-Esteem Scales.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency listed below.`

Is the tool copyrighted?

Contact the person and agency listed below.`

Contact:

Special Education, University of Colorado at Denver

Address:

Campus Box 106, P.O. Box 173364

City, State, Zip:

Denver, Colorado 80217-3364

Phone Number:

303-556-2717

 


A Parent's Description of Friendships

Who is using this tool and for what purposes?

Developed at the University of Colorado at Denver and used in a research context to study friendship patterns among children with and without disabilities.

Remarks, if any:

This tool was provided without comment and reviewed by the project staff.

In general, has this tool served it's purpose?

Not known, since the study began in March, 1992.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Provided to parents of children with disabilities.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

Mailed survey.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

In addition to the mailed survey, researchers observe the student with disabilities as he or she relates with other students at school.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Contact the person and agency listed below.`

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Contact the person and agency listed below.`

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency listed below.`

Is the tool copyrighted?

Contact the person and agency listed below.`

Contact:

School Psychology Program, University of Colorado at Denver

Address:

Campus Box 106, P.O. Box 173364

City, State, Zip:

Denver, Colorado 80217-3364

Phone Number:

303-556-2717

 


Quality Assurance

Who is using this tool and for what purposes?

Developed by the Area Agency Region VI in New Hampshire for use in evaluating residential services. Adapted from PASS (Wolfensberger, & Glenn, 1975), using the principles of normalization and John O'Brien's five essential accomplishments.

Remarks, if any:

This tool was provided with some comment received through a telephone interview.

In general, has this tool served it's purpose?

It works well as long as the team remains flexible and uses it flexibly.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. Includes a consumer interview, but no strategies for persons with communication limitations.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

In-person with all of the above.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

Used by a volunteer team, it takes about 11 hours over a one and one-half week period of time. Staff members are trained in social role valorization.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

The final day involves a conciliation meeting, focusing on both the individual and the service agency.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency listed below.`

Is the tool copyrighted?

No; it may be used as needed.

Contact:

Area Agency Region VI

Address:

32 D.W. Highway, Harris Pond, Suite 22

City, State, Zip:

Merrimack, Hew Hampshire 03054

Phone Number:

603-626-0516

 


Satisfaction with Life Domains

Who is using this tool and for what purposes?

This tool was developed at the State University of New York at Buffalo to measure the satisfaction of persons with chronic mental illness in community living arrangements. It was adapted from a tool that measured American Perception of Life Quality (by Andres and Withey).

Remarks, if any:

This tool was provided with some comment received through a telephone interview.

In general, has this tool served it's purpose?

According to the authors, the tool worked reasonably well to separate out actual variation in people's lives.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

No. However, the questions are worded in reasonably easy-to-understand language.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

The information is provided through an interview with the consumer. It's unique aspect is a set of 7 faces that persons can point to in response to a question. Faces start with a full smile and move towards a full frown.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

It was applied in a research context and appears as though it would take about 10 minutes to complete.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Results were compiled across individuals for the purposes of this study which is attached.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency listed below.`

Is the tool copyrighted?

Contact the person and agency listed below.`

Contact:

Department of Psychiatry, State University of New York at Buffalo

Address:

2211 Main Street, Building E

City, State, Zip:

Buffalo, New York 14214

Phone Number:

 


Some Thoughts on Performance Standards for Supported Employment and Living Programs

Who is using this tool and for what purposes?

This is a guide was developed by Allen, Shea & Associates (Napa, California) to assist service agencies in developing a measurable, quality-of-life outcome index based on persons served.

Remarks, if any:

This tool design outline was developed by project reviewers.

In general, has this tool served it's purpose?

It has not been field-tested.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

The limitations would only be in situations where there are people who don't know the focus person and he/she cannot communicate well. Index outcome areas are as follows: community integration; friendships and relationships; choice-making; self-reliance; being productive in employment or community service; good health and reasonable safety; and, feeling good about oneself.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

A service agency would decide which of the 58 elements in 7 outcome areas to include in their index based on: 1. the relative importance to consumers who are served; 2. ease of data retrieval; and, 3. the level of intrusion on people's lives.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

It does not take special training other than a knowledge of group facilitation. Time would vary on how many items are used in the quality-of-life index.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

No.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

No.

Is the tool copyrighted?

Not copyrighted; items can be used with acknowledgement of source.

Contact:

Allen, Shea & Associates

Address:

1780 Third Street

City, State, Zip:

Napa, CA 94559

Phone Number:

707-258-1326

 


Individual Quality of Life Indicators

Who is using this tool and for what purposes?

This tool was developed by Allen, Shea & Associates (Napa, California) for use by a circle of friends who are helping support a person with a developmental disability in leading a quality life.

Remarks, if any:

This tool was adapted by one of the project reviewers.

In general, has this tool served it's purpose?

It is currently being field-tested.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

The limitations would only be in situations where there are people who don't know the focus person and he/she cannot communicate well. Index areas can be anything that's identified by the focus person and the circle of friends.

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

In-person interviews with circle members who identify what things look like when they're going well and when they could be better.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

It does not require special training and takes about one hour to complete the indicators and another hour to develop a list of support activities.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Indicators are graphed so that there is a visual record of what things are like when they're going well and when they could be going better.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

No.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

One is attached.

Is the tool copyrighted?

Not copyrighted; items can be used with acknowledgement of source.

Contact:

Allen, Shea & Associates

Address:

1780 Third Street

City, State, Zip:

Napa, CA 94559

Phone Number:

707-258-1326

 


Quality of Life Questionnaire

Who is using this tool and for what purposes?

The authorship of this tool is not known, but it appears to be very similar to work completed by Schalock. It also appears to have been used as a way of evaluating service quality as well as individual life quality.

Remarks, if any:

This tool was provided without comment or identification and reviewed by the project staff.

In general, has this tool served it's purpose?

Not known.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. The language of the survey would limit its use to persons who can communicate well. (e.g. How much control do you have over when you go to bed and when you get up?)

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

In-person interview with consumer.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

Does not appear to take special training and appears to take about 20 minutes to complete.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Not known.

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Not known.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Not known.

Is the tool copyrighted?

Not known.

Contact:

Not known.

Address:

 

City, State, Zip:

 

Phone Number:


Worker Loneliness Questionnaire

Who is using this tool and for what purposes?

The tool was developed in 1989 at the University of Illinois to measure friendship and sense of belonging at work. It was adapted from earlier work by Asher and Williams in 1987.

Remarks, if any:

This tool was provided through the literature review and summarized by the project staff.

In general, has this tool served it's purpose?

Yes. According to the attached article, it's a reliable way to assess loneliness with persons who have mild to moderate mental retardation.

Has the tool been applied to individuals with developmental disabilities? Are there limitations regarding to whom the tool can be applied in terms of ability level, age, communication skills, etc.?

Yes. The language of the survey would limit its use to persons who can communicate well (e.g. Do you like to look at magazines?)

How is the tool applied? Mailed? In-person? Telephone interview? Who provides information: a. the person with a disability? b. the family? c. the service provider? d. the service organization? e. someone else?

In-person interview with consumer.

By whom is the tool applied? Does it require specific training, degrees, etc.? How long does it take to apply?

For the purposes of the research, the interview was conducted by the highly trained graduate students. It would appear to take about 10-15 minutes to complete.

How are the results of the tool interpreted? Are answers combined to devise a scale, or are questions analyzed individually? Has the tool been standardized? Are there interpretation guidelines?

Scoring formulas and subscales have been developed and are outlined in the attached article titled Assessing the Loneliness of Workers with Mental Retardation by Chadsey-Rusch, et. al. in Mental Retardation, 30, 2, 85-92 (1992).

Have validity and reliability studies been conducted on the tool? Whom may we contact regarding such matters?

Yes. See above.

Are reports available that show the results of applying the tool? How would we obtain copies of such reports?

Contact the person and agency listed below.

Is the tool copyrighted?

Yes; contact the person and agency listed below.

Contact:

Department of Special Education

Address:

University of Illinois/ Champaign-Urbana

City, State, Zip:

Champaign, Illinois 61820

Phone Number:

217-333-2325

 


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